I am so thankful to everyone here on Glow. I've lurked on boards for heart babies but I can't relate to the relentless optimism and "god has a plan" attitude, which I get in real life too. One of the nurse supervisors, trying to comfort me, said "don't be scared, he will be ok." wtf?! I snapped back at her "you don't know that, you can't say that"--really, what a riduculous thing for her to say. How was she ever made a supervisor? I'm so sick of hearing it will all be ok when things just keep getting worse and worse. I know everyone here on Glow understands all too well that you don't always get your miracle.
Auggie has a facebook page where I've been trying to keep friends and family updated. I posted the link for anyone who is interested--it is public. I'm not sure how we will get through this and we need all the support we can get. (and Steph if you see this I am thinking of you and your Henry. I don't know why our boys have to endure this.)